Jhaysonn's Cure Donation Fund

Bone Marrow Transplant Birthday: 2/19/2011


New challenges expect new blessings.

5/6/2013 - Today we discovered that the GVH we have talked about so much is taking over his lungs with yet another challenge threatening Jhaysonns life.  It seems that we make one turn toward improvement and another rare disease (Bronchilitis Obliterans) arises to distract what God has put in place.  No worries though...His Grace cannot be changed in the long run.  Jhaysonn will overcome this too.

Please continue to pray for him and send your love, God hears our prayers, after all we are still here nearly five years later, and the fight will continue to victory!

The day will come when he will not have Graft vs. Host disease and it goes away, the Peripheral Neuropathy and it goes away, and the bounce in his step shall return.

Jhaysonn reminds us every day how wonderful he is and how his faith remains a beacon for all who know him.  What a lesson in endurance, courage and focus on God's promises he is to all.  And so..Jhaysonn deserves to go on, meet life again, and overcome the long term problems he faces from fifty-five cycles of chemo, nine full body radiation treatments and the stem cell transplant.  Those beautiful hands on the classical guitar will play again!

In the meantime we look for ways to expand his reach beyond home and the many disciplined things with the meds, immunology problems, goggles, skin and stomach issues, the environment and all the physical and emotional concerns that drive us to make sure his needs are met.

We thank Jesus and all of you who continue to help him overcome this very long journey.

Thank you.

JCA___________________________________________________

 Jacksonville Centre of the Arts has joined hands with Jhaysonn to provide contributors a tax deduction and invite you to help Jhaysonn with his continuing expenses and special needs.

Option #1 - Tax deductible contributions can be made out to, and mailed to:

JACKSONVILLE CENTRE OF THE ARTS
P.O. Box 350405
Jacksonville, FL 32235
Please enter into the check memo line: "Jhaysonn's Cure Fund"

JCA is a 501(c)3 under the US Tax ID#31-1740457 and have agreed to process your donations for the tax deduction.  You will receive at the address shown on your check a donation confirmation letter from JCA unless otherwise specified.

Option #2 - If you don't want or need a Tax benefit you can make a direct contribution by using the following link:

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By God's Grace!

Through the experience we are reminded of the Via Dolorosa and how Jesus established a key principle about our trials.  How many steps, strikes and beatings did Jesus take for us willingly and readily only then to forgive humanity?

At times we can feel the drain of the earthly life He must have felt so grievously;  but with every knee drop, every blood spattered moment, every cry...He never failed in the end to forgive, provide hope, and give us His story of Love, Compassion and Devotion by His actions and in turn gave us the gift of Grace.  A free gift to all without recompense for the harm humanity continues to exert on itself; that by 'just believing' our own journey begins for us to see the real value of living.

Believing is not giving anything up rather the process reveals the answers.


NEWS RELEASES


Watch the broadcast at
First Coast News
ABC25, NBC12.
Jacksonville, FL.
VIEW BROADCAST HERE

See the article at the
Jacksonville Times Union
READ ARTICLE HERE
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More Chemo
Oh boy, more chemo...

Matthew gives stem cells
Matthew donates life giving stem cells

Chemo
Many tired days

Jhaysonn Therapy
Jhaysonn on bike finding his feet.

i

Thank you for your support!

Just so you know if you are new to the site...  Since March of 2009 there have been a multitude of battles we have had to undergo when Jhaysonn returned to home from South Korea and was uninsurable.  From medicine to politics this journey has shown us the difference between the power of law and the power of God.

When Jhaysonn left on his first real job since graduation from Stetson University in 2007, and then return home with a rare case of Primary Refractory Hodgkin's Lymphoma; to enduring thirty-eight months of what amounted to torture for Jhaysonn, and then finally able to get a new treatment called SGN35 (Adcetris), watching God's Tapestry unfold has been difficult, full of fear, and moments of despair and wonder.

None the less and many remissions later the cancer finally went into what is now the longest remission period since March of 2009.  Although Jhaysonn is now in a rather difficult recovery period after all the damage done to his body, he is now able to look forward to a different phase now free of cancer since April, 2012!

Thank You and God Bless You!

Jhaysonn with Dr. Cabeza at Shands Cancer CenterJhaysonn's Beautiful Hands
The sweetest PA taking advantage of a good day to raise a smile,
and Jhaysonn playing at Douglas Anderson School of the Arts

 
Get Jhaysonn's New Instrumental
Digital Music

Listen to Jhaysonn's digital music



Listen to More Jhaysonn



Mom & Dad's Fave's

For our son:
Deut: 31:6 - Be strong and of good courage, do not fear nor be dismayed; for God, He is the One who goes with you.  He will not leave you
nor forsake you."

Psa 18:28 For you will light my candle: the LORD my God will enlighten my darkness.

Psa 18:29 For by thee I have run through a troop; and by my God have I leaped over a wall.
 

Jacksonville Centre of the Arts
Thank You!
JCA for helping Jhaysonn through providing tax-deductible contribution processing.

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Donna Deegan's Annual 26.2 to Fight Breast Cancer

Thank You!
Donna Deegan for playing a key role in saving our son's life.

Thank You!
John Thrasher
for stepping up with Donna and joining the fight for Medicaid patient rights.

Thank You!
Tim Goldfarb
CEO of Shands UF for your unending support and assitance with the State of Florida.

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Stetson University Benefit

2/21/2011 Thank You!
Dr. Robinson, Patrece Robinson, The Stetson Alumni, The Choir of the First Presbyterian Church,
Deland and Fred Eshelman for taking the time to help Jhaysonn as well as all who attended the fund raiser at Stetson's Elizabeth Hall.

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Catholic Charities of Jacksonville

Thank You!
Catholic Charities of Jacksonville
for being there at every turn when most needed.

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Jammin For Jhaysonn

3/6/2011 Thank You!
Shannon Booker & Kristin Campbell, Georges Music, Landsharks at Jax Beach for putting
together a fantastic show, and to all the bands that donated their time to play and raise funds for Jhaysonn.
Thank you to everyone who attended and shared the great music put on by great artists all day long!

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Best Water Yet!
Special Thanks to Iceland Spring Water for your donating twenty cases of water for Jhaysonn.
Your high PH water will play a great part in keeping Jhaysonn's body balanced.

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Other Links and Information:

Primary Refractory Hodgkin's Lymphoma chemotherapy info: Here
Bone marrow stem cell transplant info: Here
SGN-35/ADCETRIS info: Here
Article on Chemotherapy Induced Peripheral Neuropathy: Here
Article on Photopheresis procedure for GVH:  Here

e-Sword Home
Fantastic Free Bible Research Tool
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Reach your State Representative's:
Here

Reach your Senator's: Here

Save a Life, Give Blood!
If you are in the Gainesville area, please visit the Lifesouth Link Here
If you are in Jacksonville, please visit the Florida/Georgia Blood Alliance Here 
(We want to thank everyone who donated blood for Jhaysonn for his Bone Marrow Transplant.)

Please contact Ron Pathak for any questions you may have or report any broken links at: proprem@gmail.com

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