5/6/2013 - Today we discovered that the GVH we have
talked about so much is taking over his lungs with yet another challenge
threatening Jhaysonns life. It seems that we make one turn toward
improvement and another rare disease (Bronchilitis
Obliterans) arises to distract what God has put in place. No worries
though...His Grace cannot be changed in the long run. Jhaysonn will
overcome this too.
Please continue to pray for him and send your love, God
hears our prayers, after all we are still here nearly five years later, and the
fight will continue to victory!
Jhaysonn reminds us every day how wonderful
he is and how his faith remains a beacon for all who know him.
What a lesson in endurance, courage and focus on God's promises
he is to all. And so..Jhaysonn deserves to go
on, meet life again, and overcome the long term problems he
faces from fifty-five cycles of chemo, nine full body radiation
treatments and the stem cell transplant. Those beautiful
hands on the classical guitar will play again!
In the meantime we look for ways to expand his reach
beyond home and the many disciplined things with the meds, immunology problems,
goggles, skin and stomach issues, the environment and all the physical and
emotional concerns that drive us to make sure his needs are met.
We thank Jesus and all of you who continue to help him overcome this very
Jacksonville Centre of the Arts
has joined hands with Jhaysonn to provide contributors a tax
deduction and invite you to help Jhaysonn with his continuing
expenses and special needs.
- Tax deductible contributions can be made out to, and mailed
JACKSONVILLE CENTRE OF THE ARTS P.O. Box
350405 Jacksonville, FL 32235 Please enter into the check
memo line: "Jhaysonn's Cure Fund"
JCA is a 501(c)3 under the US
Tax ID#31-1740457 and have agreed to process your donations
for the tax deduction.
You will receive at the address shown on your check a donation
confirmation letter from JCA unless otherwise specified.
- If you don't want or need a Tax benefit you can make a direct
contribution by using the following link:
_____________________________________________________________________ By God's Grace! Through the experience
we are reminded of the Via Dolorosa and how Jesus established
a key principle about our trials.
How many steps, strikes and beatings did Jesus take
for us willingly and readily only then to forgive humanity?
At times we can feel the drain of the earthly life
He must have felt so grievously; but with every
knee drop, every blood spattered moment, every cry...He
never failed in the end to forgive, provide hope, and
give us His story of Love, Compassion and Devotion by
His actions and in turn gave us the gift of Grace. A free gift to all without recompense
for the harm humanity continues to exert on itself;
that by 'just believing' our own journey begins for
us to see the real value of living.
is not giving anything up rather the process reveals
See the article at the Jacksonville
READ ARTICLE HERE ________________________________________
Oh boy, more chemo...
Matthew donates life giving stem cells
Many tired days
Jhaysonn on bike finding his feet.
Thank you for
Just so you know if you are new to the site...
Since March of 2009 there have been a multitude of battles we have
had to undergo when Jhaysonn returned to home from South Korea and
was uninsurable. From medicine to politics this journey has
shown us the difference between the power of law and the power of
When Jhaysonn left on his first real
job since graduation from Stetson University in 2007, and then return home with a rare case of Primary Refractory Hodgkin's
Lymphoma; to enduring thirty-eight months of what amounted to torture
for Jhaysonn, and then finally able to get a new treatment called
watching God's Tapestry unfold has been difficult, full of fear, and moments of
despair and wonder.
None the less and many remissions later
the cancer finally went into what is now the longest remission period
since March of 2009. Although Jhaysonn is now in a rather
difficult recovery period after all the damage done to his body,
he is now able to look forward to a different phase now free of cancer since April, 2012!
2/21/2011 Thank You! Dr.
Robinson, Patrece Robinson, The Stetson Alumni, The Choir of the
First Presbyterian Church, Deland and Fred Eshelman for taking
the time to help Jhaysonn as well as all who attended the fund raiser
at Stetson's Elizabeth Hall.
3/6/2011 Thank You! Shannon Booker &
Kristin Campbell, Georges Music, Landsharks at Jax Beach for putting
together a fantastic show, and to all the bands that donated their
time to play and raise funds for Jhaysonn. Thank you to everyone
who attended and shared the great music put on by great artists
all day long!
Other Links and Information: Primary Refractory
Hodgkin's Lymphoma chemotherapy info: Here Bone
marrow stem cell transplant info: Here SGN-35/ADCETRIS
info: Here Article on Chemotherapy Induced Peripheral
Here Article on Photopheresis
procedure for GVH:
Fantastic Free Bible Research Tool ________________________________________________________________________________
Reach your State Representative's:Here Reach your Senator's:Here Save a Life,
Give Blood! If you are
in the Gainesville area, please visit the Lifesouth Link
Here If you are in Jacksonville, please visit the Florida/Georgia
Here (We want to thank everyone who donated blood for
Jhaysonn for his Bone Marrow Transplant.)
Ron Pathak for any questions you may have or report any broken links
Support Florida Chain for Better Florida